Day 398: A Mostly Sunny Month

Our little boy is back! Since our last update (sorry it’s been a while) Cristian has been having an absolute blast. He consistently has great energy levels, his hair is growing, and he has been able to have new experiences. This is the closest to normal we have seen in over a year.

Some of the most fun he has had has been lots of playtime with friends and cousins. Every time we go places Cristian always points out a playground or park we drive by and asks to get down to play. Good news is that now we are able to go for play time. We had a little play date with some friends kids at a school playground, we had to pry him and Leena off the slide to get in the car. We have also had cousins over to the house on several occasions. Cristian is quick to jump in with the his “friends” and run around screaming like a little 5 year old. It doesn’t get much better than this.

All this time at home (and not in the hospital) has allowed for more play time with Leena. The two of them have grown closer and are often seen running around the house together. Granted some times is it not a playful moment, but that’s what siblings are supposed to do, right? Haha

One little bump in the road we’ve had recently is a runny nose and fever scare. Blame it on the weather or allergies, but something has him congested. The first night he was warm (temp just under 100), but didn’t get hot enough to where we needed to go to the hospital. We were on edge that entire night, taking his temp every 2 hours and preparing (at least mentally) to go for a 10 day stay at the hospital. Luckily the morning came and his fever had gone away. Since this he has had a normal temp and good energy, but also a runny nose. And because “sharing is caring”, his little sister now has the same runny nose. Joys of parenting I guess.

Looking ahead we are preparing to start another cycle next week. This will be the same set of treatments Cristian has had since January, starting with a spinal tap and 5 days of steroids on top of the daily chemo. The steroids have knocked him down in the past but hopefully his body is strong enough to keep him up and playing.

We don’t know why we are on this path but every day we thank you God for all the blessings he is giving our family. He has helped us get through the darkness and is protecting our family as we go forward. We thank everyone for the support and continue to ask for prayers.