Day 339: Happy Birthday Cristian!

Today Cristian turned 5 years old! This past year has been rough to say the least, which makes today even more special. We spent the day doing some of his favorite things including walking around the mall which we haven’t done since pre-Covid. Surprisingly enough he remembered the place and his favorite spot. He is so smart!

While at the mall we stopped off at the Lego store. He has recently discovered love for legos so today we let him pick out a couple. Since things have been hard this year we definitely went overboard, and that’s ok. We will continue the celebration next weekend with a party( soonest we could get a venue we think he will love) where he will get to play with friends and family.

Aside from his birthday we are elated to report that Cristian is doing phenomenal since last visit. He is almost a completely different child compared to a month ago when we were in the intensive chemo treatments. He has a great attitude, his hair is growing back, he is eating and drinking, and generally getting along great with Leena. It is truly heart warming to see our child transitioning back to what a typical (now) 5 year old should be.

We are set to go back to the hospital on Feb 1 for another spinal tap. At this point the visits to the doctor will be monthly, most just to do a wellness check and flush the fluids in his port. We are giving him chemo (pill form) daily at home but he has been tolerating it well. While we would prefer no chemo at all, if this is what we can expect for the next 18 months, this is a walk in the park compared to what we went through.

As always we are eternally thankful for everyone who is supporting us and rooting for Cristian as we go through this journey. God continues to watch over us and answer all of our prayers. Please keep it coming, because it is working!