Day 271: Great Mood & No Chemo

What a difference a week can make! Following the rollercoaster that Cristian has been on the past couple weeks, things have been wonderful all around as he has stopped taking the steroids. He has been smiling, laughing, and playful. Another bonus is that his motion is improving as well and he has started to get a slight running movement (previously he was only speed walking like those people on the olympics). It’s been a great time for our family.

One thing we were told to expect during this phase is hair loss, and sadly it has arrived. This time his hair began falling out very quickly. Over the course of a couple days his has lost almost half the hair on his head. It is something he notices as it falls on his face, poor guy. It’s not certain if he will lose it all, but if he does then dada will go bald with him. We are in this together!

Today marks the start of the second month in this planned 2 month phase. I say planned because as we arrived at the hospital this morning for a procedure and chemo, Cristian’s bloodwork came back saying that his body is not strong enough for more chemo. Specifically his immune system is severely suppressed. This is not uncommon nor the first time it has happened to Cristian.

So this means we get another week for Cristian to recover and be a happy little boy. A bonus of this delay means that we have another week until we have to administer shots at home which no one is looking forward to. On the flip side it now pushes the finish line back a week. We are all ready to get to maintenance!

Along with all of these treatments we are also heading into the holiday season. For our family this year will be celebrations in isolation to make sure Cristian doesn’t pick up a bug and end up in the hospital. Following all of the fun that was 2020, it’s rough to have to do it again but it is what needed.

We thank all of you for the care and support you are providing us. The prayers help send healing and comfort to our family. We thank God everyday for keeping us all together and out of the hospital.