Day 193: Mouth Sores

Sadly, as the title says Cristian has developed mouth sores. We first noticed a change in his eating and drinking on Saturday when he would say that something “wasn’t good”. We didn’t think that much of it because Cristian is a picky eater. Unfortunately by the time Sunday rolled around he was barely drinking (even water) or eating anything.

In this situation we are not only concerned about the pain he may be experiencing, but also becoming dehydrated which leads to other issues.

Come Monday (today) morning Cristian was in a bad state. He had black circles around his eyes, a little blood on his lips when he woke up, and almost refused to talk. Eating and drinking was completely out of the question, and he would lash out if you asked him.

Seeing that Cristian was in pain and not improving. We sprung into action and took Cristian to the hospital. Luckily the normal office (CCBD Clinic) was open and we didn’t have to go to the ER. As we arrived at the hospital the nurses took his vitals and we began the process of getting him ready for a blood draw and IV fluids. Because he was in such pain, and a bad mood, he had a tough time with the access of his port.

Luckily this was exactly what Cristian needed. Within 5 minutes of starting the fluids there was a noticeable change in his well-being. Instead of head shaking, pointing, and growling, Cristian was talking and playing this his cars. He even asked to FaceTime with mama, which was a relief for her to see him improved.

We received the results of the blood tests and everything there looked great. The doctors looked in Cristian’s mouth to try and see any sores but could not. Based on how Cristian was complaining of pain, they believe that he has a sore (or multiple) in his throat which makes swallowing painful. Now the goal is to address the pain so Cristian can drink on his own. If we cannot manage the pain then Cristian would need to be admitted to the hospital for more IV fluids until he can drink on his own.

We gave Cristian a dose of morphine for the pain and within 15 minutes he was able to take several drinks without any complaints of pain. Goal achieved, we wouldn’t be admitted to the hospital and could go home. To help up continue to manage his pain they prescribed a couple medications for us to use.

For the rest of the day we worked to have Cristian drink lots of fluids. We did have to administer pain meds (and holy water!) once but he was a champ and drank lots of water as well as ate a good amount.

We are now in the waiting game for the sores to go away. They could continue for a few days and we will manage them with the meds we have, while continuing to push fluids.

Please pray for Cristian and that his mouth sores leave ASAP! It’s no fun seeing him in pain or having to give him more meds.