Day 138: Treatment Resumes

After a good (but too short) break from being in the hospital, we are back. Unlike last week Cristian’s blood work came back showing that his body is strong enough to resume his chemo treatments and so we march on. These treatments mark the start of a new phase, Interim Maintenance, which will last for 2 months and include a 2-4 night stay every other week. Yes, that means we will be back at the hospital for overnight stays 4 times between now and August.

Since we left the hospital last Cristian has been doing wonderful! Each day his body got stronger and stronger which allowed him to be more like the little boy we miss so much. His appetite was pretty consistent, although he has continued to lose weight. But this hasn’t stopped him from giggling, laughing, and playing which has been so good to see.

As today’s treatments have commenced Cristian has stayed in high spirits. He has not been impacted by this round and is up playing around in the room with his cars. The hospital was nice enough to give him new toys today including a huge car quilt that he wasted no time in playing with!

Now we wait for the chemo treatment to complete (3pm tomorrow) and then they will begin administering “rescue” drugs to help get it out of his system. This type of chemo goes out in his urine, so they are giving lots of fluids as well as monitoring his urine to make sure the kidneys are not in distress. They will continue to give the “rescue” drugs and fluids until the chemo levels in his urine drops to a normal level.

While he is receiving this chemo he is at risk for developing mouth sores as a side affect. These can make it hard to eat or drink, and despite the name can form anywhere his saliva goes including out the back end. The “rescue” drug and fluids are also intended to help prevent this.

We ask that everyone pray that Cristian does not develop these sores at all during this phase of treatment and that each visit is as short as possible. We trust that God will protect Cristian, and prayers will help us along our path to recovery.

5 thoughts on “Day 138: Treatment Resumes

  1. We love you Cristian stay strong buddy we pray no sores in his mouth and this goes by quickly and no pain!! Praying 🙏 we love you guys

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  2. I will continue to pray so you don’t get any sores in your mouth my champ you are strong and we love you bunches! I love seeing your smile every time

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  3. Keep smiling Cristian, to hear you laugh makes our day. You are a very special little boy and we all love you. We are all rooting for you to Continue to have good results with no side effects. We know God loves you and is answering all our prayers for you.

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  4. Such a blessing to see that huge smile on that beautiful little face. We love all of you and remember you all in our prayers daily. God is looking out for your family and will take care of you. Our prayers are that Cristian recover from each round quickly and that he have no adverse reaction to anything. Stay strong for Cristian and each other. Hugs and kisses to you all.

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