We have been waiting to see our old Cristian for the past couple weeks. With all the things his little body was dealing with, he hasn’t been himself and has felt very crummy. With the treatments he is getting prior to our hospital visit it is something you must prepare for, no immune system can lead to hospitalization. Compound that with all the things that have happened during our stay, I don’t blame him for not wanting to get out of bed.
Today, all of that changed! Cristian has had his best day in a couple weeks both from a medical standpoint and from an overall well-being perspective.
Medically Cristian’s immune system is showing signs of rapid recovery with a neutrophil count over 500. That is a bit of a magic number for the dr’s to feel confident that a patients body is able to fight off normal infections. Since we have crossed that threshold today they have cut way back on some of his meds and even stopped others entirely.
From an overall perspective we saw the same great results. Cristian was actually smiling several times during the day and joking. When we would sing or dance with the movie he would laugh, instead of his previous growl. He even spent a good amount of time out of bed so he could play with his toy!
So things seem to be heading in the right direction. We still have a few items to iron out but the doctors feel like they will all be addressed as his body continues to heal. These include:
- Continued low grade fevers
- Sporadic high blood pressure
- Belly pains
The belly pains are believed to be from not eating anything in 2 weeks and his stomach working to kickstart itself. Today Cristian had a little bit of apple juice, tomorrow we may try adding some solid items. We are being intentionally slow ramping him back up on foods because jumping back to a normal diet will wreck havoc on his digestive system.
Based on current progress we still have a few days here, at least. The plan is to continue to monitor his neutrophil counts and reduce his meds until he is off them all entirely. Before we can leave Cristian has to be eating some of the things he normally would and the fevers have to stop. Again the thinking is that his body will work these things out.
As always we thank everyone for their support and prayers. Please don’t stop now and ask God to get our son home ASAP!
Team Cristian 
Omg i am super excited to hear this. He is a champ and I’ll keep praying for him and for you guys as well thanks again for keeping up updated.
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I am so happy to see him playing with his cars again. When I see his cars lined up, I know he is getting better. Thanks to the Lords blessings and the work by his father and mother, he is getting better. What a blessing.
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Praying every day for all of you. It’s been a tough few weeks but he’ll be coming home soon. I love you all.
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