Day 55: Checking In

It’s been a few days since we updated everyone on how Cristian is doing, so want to pop in and loop you all in.

This week we start a short break from home meds, except for weekend antibiotics. It is such a relief to not be giving Cristian pills or shots, just allowing him to enjoy being a kid. This break will last for 2 weeks, and we’re going to soak it in!

Speaking of Cristian enjoying being a kid, we are seeing more of that each day. Bath time is a fun event again, playing with ALL his toys happens daily, and he is asking to go outside a couple times a day.

There are still a few things that haven’t returned yet like running and jumping, but he is working on them. The other big aspect that hasn’t returned to normal is his eating. Coming off the steroids and combined with this current round of chemo, loss of appetite is expected. Currently Cristian is eating very little each day, sometimes only half an apple. He is drinking plenty of fluids including water and juice (apple and orange).

Part of the challenge is that his taste buds are impacted by the chemo and what used to taste great to him (chocolate for example) are no longer tasty for him unfortunately. We are keeping track of his weight and so far there is no concern. If his weight does get too low then we may have to introduce an appetite stimulant.

Our next round of home treatments will kick off in about 2 weeks. This will restart what we have done over the past 2 weeks including home shots a few days a week.

Everyone’s support and prayers throughout this journey are appreciated. Cristian’s recovery is directly linked to the support you all are giving. Thank you!