Category Archives: Uncategorized

The past couple days have been fairly uneventful for Cristian, as we wait for the doctors to release him. All of the tests they have performed thus far have returned no infections since the first day which is great. Unfortunately Cristian has continued to have low grade fevers each day requiring Tylenol. This reoccurring feverContinue reading “Day 105: More Tests, More Waiting”

Following Cristian’s fever on Saturday we have remained in the hospital. The morning after admission they were able to determine that he had a bacterial infection (some long medical name I can’t remember) and started a specific antibiotic to treat it. Based on this finding the doctor said we should plan to be here forContinue reading “Day 102: Extended Stay, Without The Vacation”

We had a good start to the Memorial Day weekend as Mimi, Gpa, and Aidan showed up. Cristian was in good spirits playing all day yesterday. This morning, he went outside to play. He stopped after about an hour and said he was tired. He went inside and laid down. We took his temp andContinue reading “Day 100: Fever Weekend”

It’s hard to believe that tomorrow marks 3 months since our family was changed forever by Cristian’s diagnosis. We are thankful that we have access to medical care which is saving Cristian’s life, but that does not mean this has been easy for any of us. Each day has presented us with new challenges, andContinue reading “Day 89: A Short Ways Down a Long Road”

Following our discharge on Sunday Cristian has been enjoying himself with all the comforts of home. His toys, his comfy relaxation spots, even his little sister have all been a welcome change. He is active and even a little hungry, he had a milkshake today! It’s really great to see. As part of his dischargeContinue reading “Day 75: Surprising News!”

11am could not come fast enough. That is the time when we were set to be discharged from the hospital and continue the antibiotics from home. Luckily Cristian was able to sleep in a bit, even with the nurses frequently coming in to check him. This meant that by the time he woke up andContinue reading “Day 73: Home At Last”

Today kicked off early with a 6am blood draw to test levels which left Cristian wide awake and ready to get started. After the nurses left with their sample he asked for his tablet and a toy race car, as well as the movie Cars on TV (naturally). This was how we spent most ofContinue reading “Day 71: Normal Temp and Hospital Stay”

The past 2 weeks have been mostly good days for Cristian. He has been active, playful, and generally a good attitude. Not having the chemo administered daily at home has allowed him a slight reprieve to recover. However over that same time he has had a very limited appetite. His weight has dropped slightly, someContinue reading “Day 70: Low Temp and Hospital Stay”

It’s been a few days since we updated everyone on how Cristian is doing, so want to pop in and loop you all in. This week we start a short break from home meds, except for weekend antibiotics. It is such a relief to not be giving Cristian pills or shots, just allowing him toContinue reading “Day 55: Checking In”

Just want to send a quick thank you to everyone who has been following Cristian’s journey and supporting us. We all know this is hard, but with all the love we are receiving from everyone, it does make things a bit easier. Today we got outside a bit thanks to the Easter Bunny who leftContinue reading “Day 45: Happy Easter”