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Our little family had a good thanksgiving, albeit somewhat lonely. Maria did an amazing job cooking delicious food but Cristian stuck to his current diet of Cheeto alternatives and apple juice. Cristian’s energy has remained high even with the chemo at the hospital and at home. He has been in a good mood, such aContinue reading “Day 287: One Week Closer”

Cristian has been having a great week. He is smiling, playing, saying new words, it’s wonderful. He plays with his sister, most of the time, until she starts hitting. We are working on that. The other big development is that his hair loss has continued. At this point he only has hair left in whatContinue reading “Day 278: Long Day Of Chemo”

What a difference a week can make! Following the rollercoaster that Cristian has been on the past couple weeks, things have been wonderful all around as he has stopped taking the steroids. He has been smiling, laughing, and playful. Another bonus is that his motion is improving as well and he has started to getContinue reading “Day 271: Great Mood & No Chemo”

It’s been a little bit since our last update and want to keep everyone in the loop on how our little trooper is doing. First off we are happy to report that he was amazing following the last chemo treatment. He was incredibly happy, energetic, great mood, and eating! We pray nightly for God toContinue reading “Day 259: Ups and Downs”

The past week has been a bit of a rollercoaster for us. Following the chemo last week Cristian was knocked down a bit. His energy was low, he was needy, and didn’t want to do really anything. But as more days past by, he slowly got back to where he was having fun. Through theContinue reading “Day 250: More Chemo”

What a wonderful time we have had lately as a family. The past 2 weeks have been a blessing because Cristian has been doing so well. He is eating, laughing, playing, everything you would expect a 4 year old to be doing. Let’s not forget about his play buddy, Leena, who is almost inseparable asContinue reading “Day 243: Starting The Last Phase”

Today Cristian was set to start the next phase of his treatment, Delayed Intensification. As the name implies this phase will not be a walk in the park, but none of them have been. The chemo and medications Cristian receives this phase will have similar effects on him to what we saw in the firstContinue reading “Day 236: No Treatments This Week”

Well after 1 week in the hospital, we were finally able to come home. Bigger picture we had been in the hospital 13 out of the past 14 days including the chemo treatment and this issue. This was a big drain on all of us. Both Maria and myself had been switching turns daily atContinue reading “Day 228: Finally Home”

The past couple days have been a little roller coaster for Cristian in his recovery. We have seen a consistent improvement in his blood levels and glucose remains solid. This has given him more energy to play and get out of bed. On the downside he has started complaining of belly pains. This morning inContinue reading “Day 223: Pancreatitis (Again)”

For those old enough to get the reference in the title, you already know what this post will be about. For the rest, we are back at the hospital. While Sunday was a pretty good day for Cristian, Monday was a bit of a bumpy ride. He spent most of the day with very lowContinue reading “Day 221: Hotel California”