Author Archives: Matthew

As we left off on our last post Cristian was doing fine with the treatments and was up playing around the room. We were fortunate that this high energy and generally good attitude continued as we got further along with the treatments. The plan was chemo for 24 hours, and introduce the “rescue” medicine atContinue reading “Day 220: Phase Complete”

Today we kicked off the last dose of chemo for this phase in Cristian’s treatment and what will hopefully be our last admission to the hospital! We arrived at the hospital this morning for blood work, and once that came back within required levels we began moving forward with treatment. A part of this treatmentContinue reading “Day 215: Round 4 (Last For This Phase)”

It’s been a little bit since our last update and we’ve got a bit to unpack. Let’s dive in! Following Cristian’s last chemo treatment he had developed mouth sores which were causing him pain while swallowing. These hung around for about a week but have subsided. Cristian is now back to eating and drinking likeContinue reading “Day 208: Great News All Around”

Sadly, as the title says Cristian has developed mouth sores. We first noticed a change in his eating and drinking on Saturday when he would say that something “wasn’t good”. We didn’t think that much of it because Cristian is a picky eater. Unfortunately by the time Sunday rolled around he was barely drinking (evenContinue reading “Day 193: Mouth Sores”

After a few days in the hospital we are happy to have been released today and have everyone back home together. Throughout the treatment Cristian had a great attitude and was up playing most of the time. He was in such a good mood that he was talking to several of the nurses, compared toContinue reading “Day 190: Round 3 Complete”

After several weeks of Cristian’s blood levels being too low to resume his treatments, this week his body was able to recover to a safe level. This round of chemo includes a procedure (lumbar puncture) and then high dose of chemo of 24 hours, followed by monitoring until the chemo has left his system. WithContinue reading “Day 187: Back For Round 3”

The past week or so has been really good for our family. Cristian has continued to be asymptomatic for COVID-19 and the rest of the family is doing well. We took Cristian to the doctor for a blood test to see if his body was strong enough to handle chemo. Cristian did amazing with hisContinue reading “Day 180: No Chemo This Week”

Last week we checked Cristian into the hospital for the second round of chemo, part of the standard procedure is to administer as COVID test. Cristian has had several tests thus far in his treatment and they have all been negative. Until last week. This was a shocker result for us and something we expectedContinue reading “Day 168: Chemo and COVID”

Following last nights admission to the hospital the doctors continued to give fluids of different types to Cristian in an effort to get him back to his (new) normal self. To make sure that things were improving and to inform any changes that were needed, several blood and urine tests were taken. As the sunContinue reading “Day 165: Better Than Gatorade!”

Since leaving the hospital on Friday we have been waiting for Cristian to return to his old self and resume playing with his toys and Leena. However that hasn’t been the case as the weekend drug on. Cristian has continued to be low energy, not eating anything, and barely drinking. Poor guy has even hadContinue reading “Day 165: Back To The Hospital”