Author Archives: Matthew

It’s been a quiet couple days here at the hospital without a lot of new information to report. Apologies for any concern the gap in updates may have caused folks. I can only write so many “no update” posts before it gets stale lol. Luckily we have seen some new developments that we are happyContinue reading “Day 306: One Step Closer”

Today marks one week since we brought Cristian into the hospital. While we are glad that we brought him in when we did, having an extended stay like this is exactly what we wanted to avoid. The doctors said it is not uncommon for kids to have a hospital stay during this last phase sinceContinue reading “Day 302: One Week”

Not a lot to report for today. Just like the past few days we are still here waiting for his body to restart making immune cells. The doctors did have Cristian restart an oral antibiotic that he takes normally, hopefully that doesn’t slow recovery. Cristian was able to spend more time outside of the roomContinue reading “Day 301: Still Waiting”

Well today was another uneventful day for Cristian at the hospital. He got in a lot of play time and with each passing day he is acting more like he would at home. This makes the fact that we are at the hospital easier, but at the same time anxious to get home because heContinue reading “Day 300: A Bit of Freedom”

Today was pretty uneventful at the hospital. Cristian didn’t have any additional tests and was unhooked from the monitors for the majority of the day. He was left alone to do what he wanted, which was to play. And that’s exactly what Cristian did today. He had a very happy attitude and was all overContinue reading “Day 299: Gone Fishin‘”

Overall Cristian had a great day today, except for the whole hospital part. He woke up well rested and eager to play. In typical fashion he rotated between his favorite hang out spots while playing with his cars and watching cartoons. It is definitely a silver lining to see him still having fun even withContinue reading “Day 298: Waiting Game”

Well what we wanted to avoid has happened, last night Cristian developed a low grade fever. This confirms that his body has an infection and just wasn’t strong enough to fight it off before. We are very lucky that we brought Cristian in when we did. The fever came on over a couple hours andContinue reading “Day 297: Good News Bad News”

Overnight was fairly eventful once we got settled in the ICU, but there was still little sleep. As part of being in the ICU for close monitoring, that means close monitoring via frequent checks of vitals in the room. While we are somewhat comforted by the level of attention Cristian is getting, it does makeContinue reading “Day 296: Still In ICU”

Following an ok week since our visit on Monday, Cristian woke up feeling not well today. He complained of belly pains a bit and has thrown up numerous times before noon. Having seen these symptoms before and being cautious to make sure he doesn’t get dehydrated it was clear that we needed to head toContinue reading “Day 295: Unplanned Hospital Visit”

Over the past week we have continued to give Cristian the chemo at home as directed by the doctor. He had been holding up pretty well with high energy and great attitude, until we got to the weekend. Come Sunday Cristian had stopped being hungry, and started complaining of nausea. Things got so bad thatContinue reading “Day 291: Chemo A Day Early”