Day 259: Ups and Downs

It’s been a little bit since our last update and want to keep everyone in the loop on how our little trooper is doing. First off we are happy to report that he was amazing following the last chemo treatment. He was incredibly happy, energetic, great mood, and eating! We pray nightly for God to turn the chemo to water so it doesn’t hurt his body, last week it felt like he heard our prayers.

Even with the high energy we were still cautious over Halloween and stayed in. It was hard to see him doing so well and not being able to take him out to make memories and have fun. But you can bet that next year, it’s on!

Earlier this week we went back for more chemo and have started taking steroids again for this entire week. His bloodwork prior to the chemo came back clear and everything was within range, confirming that he felt good because his body was in a good spot. Following the chemo he was great and we went back home after about an hour.

Then we gave him the steroids…These particular steroids are used to kill off blood cells, both the good and the defective kind unfortunately. For this week Cristian will be taking them twice a day. As we got to the 2nd day Cristian has sadly dropped in his energy levels, attitude, and has just not been feeling well. We can always tell when he’s not feeling well because he asks to go ride in the car. Today he asked to ride 3 times. Thankfully he has continued to eat and drink, but there is not really anything we can do to make this more comfortable for him.

A couple weeks ago when we started this phase of treatment, Cristian also received steroids for the week and they had a similar effect on him. As the week wore on he did improve slightly but not back to his happy playful self until we stopped the steroids.

We are praying for improvement the next couple days because it is painful to see our little boy feeling so bad like this.