Well after a 3 day and 2 night stay at the hospital we are now back at home all together. This stay was strictly a testing and observation stay, which made it pretty easy for Cristian (at least as easy as being in the hospital can be).
Following the tests and extra liquid, the doctors are confident that his kidneys are operating slightly below normal due to affects of chemo he received 10 days ago. That chemo is known to be harsh on the kidneys and the doctors work to get it out of the system ASAP after 40 hours. Most Children have expelled enough of the chemo after 52 hours for levels to be safe. Cristian took longer to reach that safe level, 68 hours, and required additional medicine to get there.
This extra time with chemo is his system appears to have caused an acute injury to his kidneys which his body is recovering from. The kidneys are very resilient and will recover, but it does mean we need to be cautious when restarting chemo to not cause a re-injury. Additionally this means that future doses of the high dose chemo (3 more planned doses) will have extra fluids given to Cristian early to avoid a repeat of this situation.
The doctors do have some additional data they would like to gather to fully quantify the severity of the injury. While we are not in a dangerous situation at the moment, we need to understand the functional levels of his kidneys so we can properly adjust future treatments. This means we will be collecting urine over the next day so they can test, and then do a specialist test in the future (schedule pending).
Once we got home Cristian wasted no time getting reacquainted with his toys and his favorite chill spot. Such a good feeling
Next step will have us back at the hospital on Tuesday to check his levels and determine if his body is strong enough for chemo. Based on the treatment schedule this should be another round of the 2-4 day chemo that we had 2 weeks ago. However based on his levels while at this hospital this weekend we do not think his body has recovered enough.
Thank you all for the support and love. Please keep the prayers up as we have a long ways to go still.
Team Cristian 
I’m so glad y’all are all together again! Mom says Cristian is eating that’s awesome. I will keep y’all in my prayers love yall
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Poor little guy. We all know there is a light at the end of this tunnel but it does seem to be a ways off still. Prayers always for all of you. Wish I could give you all big hugs. Looking forward to playdates with the cousins. Love always.
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So happy that y’all are home again, hopefully he has enough time to recover. Praying for him and his recover.
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